Carson went on a run with me last night, in his Jeep stroller. I put his MP3 player in with him and it seemed that he was singing with it, most of the ride. I also asked him how he was doing and he answered in his own way telling me he was having fun. Who would have imagined that on August 30 at 5:30 in the evening Carson would need long pants, a sweatshirt and a blanket to go on a run. It was such a beautiful evening.
His seizures have been ok. We are still having 20+ a day. He has started this new thing that we are calling episodes right now, we are not sure what they are, if seizure or if he is trying to tell us something. He will go into a whole body extension then holler at us, it is not a cry or scream, just a holler like he really wants us to know something. There is not a jerk or shake that proceeds or follows this, that would be a sure sign to us that he episodes were seizures. Carson's neuro (Dr. Graff) has increased his Clonazepam temporarily to see it it helps his episodes. So far it has not helped.
Carson is sleeping through the night, and likes to sleep in on the weekends. We have been having to wake him up at 8:30am to get his shaker vest and breathing treatment going before the 9:00 bottle.
2 comments:
Wouldn't it be great to actually have someone tell you that you needed more calories? I seem to have my inner self saying this while outwardly my expansion isn't so pleasant!
Your run sounds great! And yes, who would have thought we'd be having Oct. weather in August! I'm not done with pool time!
Hopefully Carsons 'episodes' are his way of communicating something and not something more serious. Either way, may you figure it out and handle it in the usual fabulous way that you do.
Thanks again for the update, and I STILL need to get you a DVD. It is short, sweet, and has brought a tear to more than one viewer. Carson touches so many hearts, by simply being Carson!
Glad to hear Carson is doing great with more calories and is more alert and has more energy. Lots of play time! I'm sure the increase in calories will continue to help him grow like a weed...I won't even recognize him next time we are back home.
We are jealous of the Fall like weather as we are still sweltering here in Miami in the upper 90's. Although I won't complain too much as it seems the colder air up there is keeping the hurricanes away from us. Definitely a great thing! But it would be nice to have some cooler air and not sweat the second you walk out the door. :)
I hope the episodes are just Carson communicating to everyone and he is really expressing his feelings more. Knowing our family the loudness of the hollering is nothing abnormal...he fits right in with us all! :)
Glad he is sleeping very well and allowing you and Jeff the opportunity for a good night rest. Definitely another typical family trait...we all love to sleep in!
Thanks for the update and keep up the great work! We love and miss you guys! Send some of that cooler weather our way please! Talk to you soon..love and happiness!
Love always...WE BELIEVE!!!
Aunt Becky and Uncle Marcos
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