Monday, March 28, 2016

2016 Garmin Run and Menkes Foundation Fundraiser

Carson's Crew has about 10 runners so far that will run in the Oz half marathon & 10k in Olathe, KS April 16th.
Want to support Carson's Crew but really don't want to run, that is fine too!

The goal is to raise $1000.00+ for the Menkes Foundation

Tickets are being sold for $5.00 or 5 tickets for $20.00. You can either print your own tickets with the link below or write a check made out to the Menkes Foundation. Send to Sarah Bowman 15821 W. 150th Ter Olathe, KS 66062
The Prize is a 2- night Stay at Salamander Resort & Spa in Middleburg, VA!

Please also note we have a limited number of Carson's Crew T-shirts that may be purchased for $10.00 each.  

Raffle will be drawn during the after race party, around 10:30am on April 16, 2016 at the Bowman's house. You do not have to be present to win the prize.

 Come help us celebrate Carson's life and raise funds for spreading awareness of Menkes!

You can donate or purchase tickets with PAYPAL    Account Name  

Tuesday, April 29, 2014

Summer 2014

Its been almost a year, wow how time flies! 

Our Family is doing great!  Cami is now 3 years old, so sweet, caring, and smart!  Charlie is now 9 months old, and getting into everything!  He looks a lot like Carson!  So fun to watch these two interact.  The pics with Charlie are a few months old, the pic of Cami was a few weeks ago and the family pic was from October 2013.  Jeff and I are doing great, we are looking forward to our 10 year wedding anniversary in October 2014!  Thanks for your love and support!

Cameryn Nicole 3-16-11
Charles Edwin 7-14-13

Wednesday, June 12, 2013

June 12, 2013

It has been a long time, thought I would update what has been happening in our lives.

Cameryn- Turned 2 on March 16, 2013 and is an amazing daughter!  She is smart, funny, daring, caring, nurturing, and ready to learn all the time (she is flying through all the developmental milestones!)  She moved her self to a toddler bed in February, she no longer wanted in her crib...  Cami gets to stay at home with me, I am still doing in home day care, she loves playing with all her friends.  However, when the weekends come I think she is even more excited for 'stay home' days, when Dad gets to stay home too.  She is just such a joy to have in our lives, we are truly blessed!

Sarah-  I just recently downsized my day care and am loving the less stress and shorter hours!  This change comes just before another major change in our family.  I am expecting another baby around July 20!  We are having another boy!  We are so excited to get back to having a family of four and tremendously missing what should have been a family of five.  Baby and I are healthy, we did not have any testing done, as our chance of having another Menkes boy is very low.  I am looking forward to meeting this little boy and holding him in my arms!  Big sister Cami is too!

Jeff-  Is still working with Olathe School District.  And is looking forward to all the summer weather to play golf in.  Jeff has also had many projects recently!  He set up, cleaned up and fixed a, new to us, swing set!  Great fun in our backyard.  Our basement recently got flooded by rain waters and he has been helping with cleaning out, insurance and figuring out what part of the rebuild he can do.  What a mess that has been!  He also has been helping with tremendous amounts of house work!  (Yes, I am letting out his secret.)  He helps with cleaning, vacuuming, laundry, dishes, etc... What a burden he has been lifting off me!

2012 Holidays-  The holidays were very difficult to get through, a lot of bitter sweet moments!  Family, friends and just being together helped.  We also had an unexpected visitor bring smiles to our faces.  The following thank you letter that I wrote to them explains a lot.... (link and letter below)

Thank you to everyone who has been continuing to pray and support us!  We truly believe that Carson is in Heaven and is a perfect healthy little boy, but that doesn't make the void in our arms and hearts any smaller.  Please continue your prayers and support...

Hugs, Kisses and Blessings from us -

Jeff, Sarah, Cameryn, Baby C and Angel Carson.

Thank you letter to Santa -

Dear Friends,
I would like to share my story to you and let you know what a GREAT service Santa America provides.

My son, Carson, was born on August 11, 2007 and was diagnosed with Menkes disease in Early January 2008.  We became a hospice family right away.  In December of 2009 we had our first visit from the Hospice Santa, what an amazing event.  We were so excited that we were able to share this experience with a son we could not take out of the house.  This became a tradition and for three years Santa came to visit our house and our family!  Santa (and the team behind him) made us feel so special and helped us enjoy the season for what it is and not dwell on the fact that it could have been our last Christmas with our son.  We have such wonderful memories and pictures that we would have never other wise had.

Carson passed away on February 10, 2012.  When Christmas came around in 2012, it was a season I was beginning to not want to celebrate.  I then heard from a support group of mine that Santa could still visit us.  With not much hope I emailed our hospice coordinator and asked if Santa could visit us again.  He came, and with his visit he brought a renewed belief of the season and much more reason to look at what we have been blessed with.  I can not say in enough words how Santa’s visit in 2012 helped us make it through the Christmas season.  With him he also brought a book, Angels in the Sky, it is now my 22 month old daughters favorite book.  Santa also gave us reason to look forward to next years visit from him.  After all Christmas is about tradition and Santa’s visit became tradition for us, we can’t stop that just because our son is now in Heaven.  Santa did more than he knows in our house hold than he knows!  We look forward to many more years of this tradition.

If there is anything else I can provide to help assure that the Santa America program continues to bring its services to my family and many more, please let me know!
Sincerely -

Sarah, Jeff, Cameryn and Angel Carson

Saturday, July 28, 2012

July 28, 2012 update

We have quite a few memorable dates coming up in August.  Yes, we are thinking about them and if you are checking this sight you must be thinking about them too.  THANK YOU!  for that.  Carson's 6 month birthday in Heaven is on August 10, Carson would have been 5 on August 11, and Sarah's birthday is August 13.  We do have some special ways to commemorate all of these dates, there will be pictures to come.
We will not be having our annual birthday bash for Carson... please help us celebrate and remember him by having your own balloon release or just stepping outside and saying his name... these are a few ideas, we would love to hear (or see pictures) how you celebrate Carson.  Also, Prince of Peace Parish in Olathe, will be saying a mass in Carson's honor on August 12 at 12:00pm.
Thanks again for all the love and support.

Love, Sarah, Jeff, and Cameryn

Friday, March 23, 2012

OZ half marathon - April 21, 2012

Carson's Crew has about 20 runners so far that will run in the Oz half marathon in Olathe Ks April 21st.
Want to support Carson's Crew but really don't want to run! No problem! The Crew have arranged for some great raffle prizes!

1. Week stay in lake Tahoe!

2. Two night Stay in Kiawah Island, Sc

3 Flip Camera

The goal is to raise $5000.00 for the Menkes Foundation

Tickets are being sold for these great prizes 1 ticket for $5.00 or 5 tickets for $20.00. You can either print your own tickets with the link below or write a check made out to the Menkes Foundation. Send to Sarah Bowman 15821 W. 150th Ter Olathe, KS 66062

Raffle Ticket Link-

Week stay in Lake Tahoe Info-

Kiawah Island 2 night stay in 2 bedroom villa info-

Please also note, participants in the run (full marathon, half marathon or 5K) will receive a custom Carson's Crew shirt. If you are not participating in the run, shirts will be available for $8.00. Shirt pick up with be at the Bowman house April 15 -20. Please bring your receipt from the OZ run or $8.00.

Raffles will be drawn during the after party, around 12:00 pm on April 21, 2012 at the Bowman's house. You do not have to be present to win the prize.

Come help us celebrate Carson's life and raise funds for spreading awareness of Menkes!

You know how to get a hold of me if you have any other questions! Sarah
Here are the details of Carson's Crew 2012! We are increasing the milage.... a 1/2 Marathon! 13.1 miles. Please let us know if you are interested in joining the run! Happy training's!

Dear Friends & Family,

We are writing this letter to share with you a commitment each of us has made. On April 21, 2012, Carson’s Crew will be joining approximately 1200 other runners and walkers in completing the OZ ½ Marathon in Olathe, Kansas. The purpose of this letter is to invite you to join us at this race and of course, the after party!

There are a variety of reasons people commit to the months of training. It could be the exercise, losing a few pounds, getting in shape, or the camaraderie of doing this with family and friends. Whatever the individual motivations for the months of commitment, as a group, we have decided to raise money for the Menkes Foundation. The foundation was formed to advocate awareness of children afflicted with Menkes disease and encourages prenatal genetic testing for neurological related diseases.

In the beginning of the letter, we invited all of you to join us on this marathon. We realize that some of you may not want to participate in the race but you can join us by helping us reach our goal, which is to raise $5000. We plan to raise this amount by having a raffle drawing. The raffle tickets will be sold 1 for $5 or 5 for $20. 1st place will receive one week’s accommodations in Tahoe, 2nd place will receive a 2 night stay at Kiawah Island Golf Resort and 3rd place will receive a Flip Camera. To purchase raffle tickets use paypal on or send a check made out to the Menkes Foundation and sent to Sarah Bowman, 15821 W 150th Terrace, Olathe, KS 60062. The drawing will take place on April 21st at noon at Jeff and Sarah’s house. Join us for the race after-party. You do not need to be present to win. The Menkes Foundation is exempt from federal income tax under section 501(c)3 as a non-profit educational organization. All of Carson’s Crew Participants will receive a Carson’s Crew running t-shirt to wear during the race. Extra shirts will be available for $8 during the event weekend. Each runner is responsible for registering for the race themselves at

We thank you in advance for your generosity and for joining us in this marathon to raise funding for the Menkes Foundation on Carson’s behalf.

Thank you and good luck with your training.

Carson’s Crew

Friday, March 9, 2012

Moment of silence

A moment of silence. One month ago, our little man, Carson earned his Angel Wings. We miss you bud...