Fudraiser is Feb 28th.
Slient Auction and Poker Tourney is looking good. Some great prizes are coming in like, T-Bones tickets and you get to throw out the first pitch of the baseball game, vacation packages, gift cards, and much more. Anthony Davis, Former Chief and Super Bowl winner with the Ravens will be helping with the silent auction with some of his sports memorabilia from Anthony Davis & Associates.
For a schedule of events click link below--
http://docs.google.com/Doc?id=dfrjxw52_4c3xndf6
We are asking if you can please pre order your tickets for $35.00 for dinner or $45.00 dinner and poker. We would like to get a count for how much food to order. Click on the below link to purchase tickets
http://docs.google.com/Doc?id=dfrjxw52_2ctkj3sgz&hl=en
If you have any questions please email
jbjk97@yahoo.com
kathimarieallen@yahoo.com
Thank you for your support!
Friday, January 23, 2009
Monday, January 19, 2009
New pics of our Big Boy!!!
HELLO....
During OT, Carson was playing with his football (full of jingle bells) and talking to us.
So very tired...that is a kids breathe right strip on nose...helps when he is stuffed up.
Like father, like son...
So very tired...that is a kids breathe right strip on nose...helps when he is stuffed up.
Like father, like son...
Saturday, January 17, 2009
Update 1-17-09
There are so many things to update you all on...I am not sure where to start. We have been doing great the last few weeks.
We had a check up with Carson's pediatrician on January 8, she said, he was looking good and to keep on doing what we are doing!
Carson's nutritionist this week was very surprised...he gained 9 ounces and grew 1 1/4 inches in a week!!! I this explains why he slept until 2:00 pm a few Saturdays ago. This brings Carson to 24 pounds 13 ounces and 32 1/4 inches long! He is our big boy...
We have cancelled his swallow study, as this would have been a waist of time, we know that Carson will not go back to complete oral feeding. Carson still has his NG feeding tube (through the nose). We have a surgery consult on February 3 to begin the process of giving Carson a Mic-key button (through the stomach). We are also going to do a procedure called fundoplasty, this will help Carson's reflux from being aspirated.
We have a nurse come to the house 5 days a week to help take care of Carson, they are here from 8:00-4:00. We have Jen who is our Tues, Wed, Thurs nurse and we have Robin who is our Mon and Fri nurse. They have been a tramendous help! We have also been having volunteers come to the house a few times a week to give Jeff and I time to double team house work or what ever else needs to be done.
Well that is all the updates we have for now...
Don't forget to keep checking for updates on the fundraiser...we are getting very excited to see all of you, and have so much fun at the event! Good luck on winning the raffle...I know we would all like to get out of this cold and go to the beach.
We had a check up with Carson's pediatrician on January 8, she said, he was looking good and to keep on doing what we are doing!
Carson's nutritionist this week was very surprised...he gained 9 ounces and grew 1 1/4 inches in a week!!! I this explains why he slept until 2:00 pm a few Saturdays ago. This brings Carson to 24 pounds 13 ounces and 32 1/4 inches long! He is our big boy...
We have cancelled his swallow study, as this would have been a waist of time, we know that Carson will not go back to complete oral feeding. Carson still has his NG feeding tube (through the nose). We have a surgery consult on February 3 to begin the process of giving Carson a Mic-key button (through the stomach). We are also going to do a procedure called fundoplasty, this will help Carson's reflux from being aspirated.
We have a nurse come to the house 5 days a week to help take care of Carson, they are here from 8:00-4:00. We have Jen who is our Tues, Wed, Thurs nurse and we have Robin who is our Mon and Fri nurse. They have been a tramendous help! We have also been having volunteers come to the house a few times a week to give Jeff and I time to double team house work or what ever else needs to be done.
Well that is all the updates we have for now...
Don't forget to keep checking for updates on the fundraiser...we are getting very excited to see all of you, and have so much fun at the event! Good luck on winning the raffle...I know we would all like to get out of this cold and go to the beach.
Monday, January 12, 2009
Vacation Raffle
Fundraiser Raffle Sat Feb. 28th 8pm
The winner of the raffle will enjoy a 2-Night Stay in a Scenic Villa at the beautiful Kiawah Island Golf Resort located on Kiawah Island, South Carolina. The package also includes one round of golf for 4 people at The Ocean Course, Kiawah’s award winning Pete Dye golf course. The Ocean Course is the future home of the 2012 PGA Championship and played host to the ’91 and ’97 Ryder Cup, ‘2003 World Cup and 2007 Senior PGA Tournaments.Check it out!
Check it out! http://www.kiawahresort.com/
http://www.kiawahresort.com/golf/the-ocean-course/
We hope to see everyone at the Fundraiser on Feb. 28th in Olathe, KS but we realize busy schedules don't always allow. We greatly appreciate your support by purchasing raffle tickets for Carson. Purchase Tickets on the right side of the blog. After you donate we will send you an email with confirmation. Thanks
The winner of the raffle will enjoy a 2-Night Stay in a Scenic Villa at the beautiful Kiawah Island Golf Resort located on Kiawah Island, South Carolina. The package also includes one round of golf for 4 people at The Ocean Course, Kiawah’s award winning Pete Dye golf course. The Ocean Course is the future home of the 2012 PGA Championship and played host to the ’91 and ’97 Ryder Cup, ‘2003 World Cup and 2007 Senior PGA Tournaments.Check it out!
Check it out! http://www.kiawahresort.com/
http://www.kiawahresort.com/golf/the-ocean-course/
We hope to see everyone at the Fundraiser on Feb. 28th in Olathe, KS but we realize busy schedules don't always allow. We greatly appreciate your support by purchasing raffle tickets for Carson. Purchase Tickets on the right side of the blog. After you donate we will send you an email with confirmation. Thanks
Thursday, January 1, 2009
Happy New Year!!! A year of reflections.
We have definitely had our share of roller coasters this year. However, through it all we are blessed to have each other and support from all of you. In January of 2008 Carson was diagnosed with a rare genetic disease called Menkes. This is a copper deficiency that causes seizures, brain damage, lack of muscle control and will eventually result in death. Hearing this news was a huge blow to us, sense then we have been living day to day cherishing every moment we have together. We have made a web site with a blog for Carson to keep everyone updated on Carson through out the year. Please visit it, http://www.carsonbowman.net/.
This past year has also brought us many other events. One of the most exciting news is we moved into a new house in April! It is only a few blocks from our old house, but here we have much more room to spread out. Our new address is 15821 W 150th Terrace Olathe, KS 66062. We traveled to Maryland on Memorial weekend for the Menkes foundation Gala. There we met other families who had Menkes Babies as well as other Doctors who study Menkes. We had our first fundraiser for Carson in June at the Carroll American Legion. What a huge turn out and success!!! We celebrated Carson’s first birthday in August with a huge barbeque at Heritage Park. We have had only two hospital stays in 2008, each were a 6 night stay, one in January 2008 (our initial diagnosis) and the other in December 2008. We do feel pretty lucky that these were the only hospital stays of 2008 and we look forward to the same or even less hospital time in 2009. Please help us pray for this as well as a miracle for the good Lord to heal our Precious Carson. We are having Carson’s second fundraiser on February 28, 2009. You are all invited; please see his web site for more details. This one is going to be at the Holiday Inn in Olathe, KS on 151st. (Same place as our wedding reception.)
Sarah has been lucky and able to stay home with Carson. A great blessing in its self! She is providing childcare for 3 others currently and one more to come in April. This has had its challenges also, but it’s all for Carson. With Carson’s new machines we are lucky to have a full time nurse in the home to take care of him during the day. This greatly helps Sarah.
Jeff is still working with Olathe School District as a Supervisor in the Technology department. He also still has his cleaning business, but has been passing most of it off the Chad (who lives with us) so Jeff can be at home to help most evenings.
Jeff and Sarah are doing great; we have really come together more in the last year. We are working hard to take care of Carson and each other. I know with all of your help and support, it has made it easier on us!! Above all we are just living day by day and cherishing every moment we can with our precious son.
We do believe and ask the Lord everyday for a miracle to heal Carson so we can have him for years and years to come.
Have a happy and safe start to the New Year! We hope to see you all at the fundraiser in February!!!
This past year has also brought us many other events. One of the most exciting news is we moved into a new house in April! It is only a few blocks from our old house, but here we have much more room to spread out. Our new address is 15821 W 150th Terrace Olathe, KS 66062. We traveled to Maryland on Memorial weekend for the Menkes foundation Gala. There we met other families who had Menkes Babies as well as other Doctors who study Menkes. We had our first fundraiser for Carson in June at the Carroll American Legion. What a huge turn out and success!!! We celebrated Carson’s first birthday in August with a huge barbeque at Heritage Park. We have had only two hospital stays in 2008, each were a 6 night stay, one in January 2008 (our initial diagnosis) and the other in December 2008. We do feel pretty lucky that these were the only hospital stays of 2008 and we look forward to the same or even less hospital time in 2009. Please help us pray for this as well as a miracle for the good Lord to heal our Precious Carson. We are having Carson’s second fundraiser on February 28, 2009. You are all invited; please see his web site for more details. This one is going to be at the Holiday Inn in Olathe, KS on 151st. (Same place as our wedding reception.)
Sarah has been lucky and able to stay home with Carson. A great blessing in its self! She is providing childcare for 3 others currently and one more to come in April. This has had its challenges also, but it’s all for Carson. With Carson’s new machines we are lucky to have a full time nurse in the home to take care of him during the day. This greatly helps Sarah.
Jeff is still working with Olathe School District as a Supervisor in the Technology department. He also still has his cleaning business, but has been passing most of it off the Chad (who lives with us) so Jeff can be at home to help most evenings.
Jeff and Sarah are doing great; we have really come together more in the last year. We are working hard to take care of Carson and each other. I know with all of your help and support, it has made it easier on us!! Above all we are just living day by day and cherishing every moment we can with our precious son.
We do believe and ask the Lord everyday for a miracle to heal Carson so we can have him for years and years to come.
Have a happy and safe start to the New Year! We hope to see you all at the fundraiser in February!!!
more pics
Carson got his new chair delivered this week. This is a Kid Cart, it has great support for him and allows him to be part of the fun much easier than before.
Carson is playing with his new Christmas presents, he loves to watch the fish swim by and listen to the ocean. He will every now and then try to hit the fish. There is a video of this on the U-tube link on the website.
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