Jeff and I had a follow up appointment with the Genetics department at Children's Mercy. We learned that I am not a carrier of Menkes. This means that Carson is truly one of a kind. We also learned more about Carson's specific mutation, although it does not change anything. Our future with Carson is still very much unknown...the doctors can only guess what may come. Today's events have not faltered our trust and belief in God, we still ask him to grant us another miracle. Our first miracle was in receiving Carson, our second one is to ask that God completely heal him, so we can have him the rest of our lives.
We love you all, thanks for your support and prayers!