Jeff and I had a follow up appointment with the Genetics department at Children's Mercy. We learned that I am not a carrier of Menkes. This means that Carson is truly one of a kind. We also learned more about Carson's specific mutation, although it does not change anything. Our future with Carson is still very much unknown...the doctors can only guess what may come. Today's events have not faltered our trust and belief in God, we still ask him to grant us another miracle. Our first miracle was in receiving Carson, our second one is to ask that God completely heal him, so we can have him the rest of our lives.
We love you all, thanks for your support and prayers!
1 comment:
Jeff and Sarah, what wonderful news that you are not a carrier (Sarah). What an answer to prayer! I remember very well the emotions that we felt during that time with me being tested for a Barth syndrome carrier. I understand this is a difficult time, so hold on and focus on all the wonderful things that are happening in your life. Your faith and trust in Christ, love for one another, positive spirits, and support from family and friends will help you get through any struggle or trial. Lots of Love, Tracy Brody
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