Surpassed 10000 hits...WOW!

Carson's site has surpassed the 10000 marker...WOW...that just blows me away! Thank you everyone for your thoughts and prayers!

Carson had a good weekend and was very tuckered out by Sunday evening. After a bath and barely getting his food down him before he passed out...he was out for the count. And he has started off the week with a great day! Sarah sent a text this morning saying "C is having a great day! Playing with toys!!!" What a blessed little boy and how blessed we are to have him in our lives.

I'll let Sarah update about this past Friday's appointment and a few changes they have made with Carson's medications...but all is well.

Have a great week!

Love,

Aunt Becky

WE BELIEVE

Great Monday!!!

After having a rough weekend, we are having a great Monday. Carson was very, very fussy on Saturday, nothing would soothe him, nor was he eating his normal amounts. He also had a lot of mucus on Saturday, we had to use the suction machine many, many times. We did however make it out to his Aunt Jen and Uncle John's house on Saturday for a BBQ while Cousin Julianna was in town. Sunday we had a little better day, we slept a lot...catching up from Saturday and only a few hours on Saturday night. (Carson has been having an interesting sleep pattern. He has been waking up from around 3:00 to 5:30 am crying. We have tried everything to soothe him, nothing seems to work until he wears himself out.)

Today we are having a great day! He has eaten well, napped and worked hard...Carson has stretched his muscles, had tummy time, where he worked hard to lift his head and look at his game on the computer. Carson has also had a lot of floor time, playing with Addy (a new baby I watch). We hope all of this hard work and content boy will continue threw the week.

Thanks for checking up on Carson! Will write again soon and add some pics!

Happy Birthday to Daddy!

It's Daddy's birthday today! Happy Birthday, Happy Birthday!

Carson has two teeth down...the top tooth has finally broken through so hopefully he will have a break before any others start coming in. His ear infection and strep on his bottom are on the mend and his antibiotics are almost done! Thanks for all the prayers!

Carson gets to see his cousin Julianna this weekend and is super excited as it has been a long time! Other than that things are just pretty low key. I know Carson has been off in his sleep patterns lately...waking up at 3am and staying up for a few hours then going back to sleep. Prayers for his sleep pattern and rest would be great! I know Sarah and Jeff would appreciate it too!

Thanks again. Have a great rest of the week and weekend!

WE BELIEVE

A rough day

We had a little bit of a scare today. We woke up this morning and Carson had close to a 104 degree fever. He was very lethargic and would not eat or drink anything. We took him to Children's Mercy South urgent care. The nurses and drs took very good care of us. We actually had one who shared her experience with us, she lost her little one less then a year ago at 3 weeks of age, he had a rare genetic syndrome called Door syndrome. To learn more about this please visit their web site www.colinsugarbears.com. (I do not think she would mind me passing this info along) It turns out Carson just has some 'normal' child sickness. He has an ear infection in his right ear and a strep infection on his tush. We gave him some mortin in the hospital and he perked up, he did eat his bottle, cereal and meds there also. After his fever went down, we came home with a prescription for amoxicillin. Carson had a pretty crabby afternoon and evening, I think his tush hurts. He has finally calmed down a little tonight after eating like a pig!!! We are headed to bed shortly and hope to have a much better day tomorrow.

Thanks for Praying!!!

Teething...

More teething...Another tooth is about to come through on the top this time (and maybe another soon to follow)...so as you can imagine Carson has been a bit cranky and he has every reason to be that way. Sarah and Jeff keep up with the tylenol and cold wash clothes with ice and oragel...they are pros at this! He enjoys having his gums massaged and I was caught off guard one day at how strong Carson's jaws are and how his "bite" can hurt even without a mouth full of teeth. I'll be more attentive next time. :)

Things have been pretty low key overall...Carson had a visit from his Grandma and Grandpa from Iowa this weekend and also got to see his Great-Grandma from Topeka. He even talked to his cousin Julianna on the phone and although he wasn't too talkative at the moment he definitely was listening intently on what Julianna had to tell him. :)

Continue the prayers for the teething process and for his seizures to go away...

WE BELIEVE

Love,
Aunt Becky

Update.....

Carson has been doing ok with all that he is going through. During our 12 month check up at the pediatrician, the Dr. heard some wheezing, so we have started him on Pulmicort, an asthma steroid. Carson gets two breathing treatments a day, two with Albuterol and one with Pulmicort. He still pulls at the mask, but is getting used to them. The breathing treatments are seeming to help, he is coughing a lot more of the crud up, so in return we are having to use the suction machine more also. Carson is still eating well, three solid meals a day consisting of rice/oatmeal and fruit/veggie/meat, on top of five, 6-8 oz bottles. Carson is completely off of formula and is drinking soy milk, doing just fine with the switch. He has been hurting with his teeth coming in so sometimes is not in the mood to eat and has trouble sleeping. With all of these new things Carson has had increased seizure activity, we have increased his Phenobarbitol, it has helped a little. We continue to have occupational therapy twice a week, vision once a week and nutrition once a month visiting. Carson is doing well with these, although we have seen decreases and increases in activity levels due to all the changes he is experiencing.

Please continue to pray for all of us. We need continued strength and support. We are still praying for another miracle. Our first miracle was being given Carson in the first place, our second miracle we are asking for is to heal him so he can stay on earth with us for a very long time. We want to see him play with his friends, laughing, riding bikes and just doing what boys do. We want to see him yell at his mom for doing something he did not like, and talk to his dad about girls. We want to see him go off the collage and get married and have kids of his own. Please pray that all of this and more will happen for Carson and for us. He has a lot more life to live. WE DO BELIEVE!!!

That is all I have for now. Thank you for your support and continued interest in Carson and our family.


PS. Jeff and I are also doing great together. We have grown closer through this ordeal, and our love and faith in each other is very strong. We have grown up a lot and realize that life is to precious to fight and pick at the little stuff that does not matter. God brought us together and gave us Carson for a reason...we love each other very much.

Many firsts in our house lately!

Carson's first birthday....

We had a blast. Thanks everyone for coming!!!

Carson's first tooth....

His tooth just started popping through on the 18th. It is still bearly there, so there are no pictures of it yet.

Carson's first hair cut....

Carson's Aunt Jen gave him his first hair cut.

He still has is mohawk, she just took a little off the top.