Carson has been doing ok with all that he is going through. During our 12 month check up at the pediatrician, the Dr. heard some wheezing, so we have started him on Pulmicort, an asthma steroid. Carson gets two breathing treatments a day, two with Albuterol and one with Pulmicort. He still pulls at the mask, but is getting used to them. The breathing treatments are seeming to help, he is coughing a lot more of the crud up, so in return we are having to use the suction machine more also. Carson is still eating well, three solid meals a day consisting of rice/oatmeal and fruit/veggie/meat, on top of five, 6-8 oz bottles. Carson is completely off of formula and is drinking soy milk, doing just fine with the switch. He has been hurting with his teeth coming in so sometimes is not in the mood to eat and has trouble sleeping. With all of these new things Carson has had increased seizure activity, we have increased his Phenobarbitol, it has helped a little. We continue to have occupational therapy twice a week, vision once a week and nutrition once a month visiting. Carson is doing well with these, although we have seen decreases and increases in activity levels due to all the changes he is experiencing.
Please continue to pray for all of us. We need continued strength and support. We are still praying for another miracle. Our first miracle was being given Carson in the first place, our second miracle we are asking for is to heal him so he can stay on earth with us for a very long time. We want to see him play with his friends, laughing, riding bikes and just doing what boys do. We want to see him yell at his mom for doing something he did not like, and talk to his dad about girls. We want to see him go off the collage and get married and have kids of his own. Please pray that all of this and more will happen for Carson and for us. He has a lot more life to live. WE DO BELIEVE!!!
That is all I have for now. Thank you for your support and continued interest in Carson and our family.
PS. Jeff and I are also doing great together. We have grown closer through this ordeal, and our love and faith in each other is very strong. We have grown up a lot and realize that life is to precious to fight and pick at the little stuff that does not matter. God brought us together and gave us Carson for a reason...we love each other very much.
2 comments:
I love my little cman! Just heading to bed and saying my many prayers for you and your mom and dad....stay stong! I love you all very much!
Believin!!!
Love,
Aunt Becky
HI WANTED TO LET YOU KNOW THAT WE HAVE BEEN THINKING OF ALL OF YOU. LOVE THE SLIDE SHOW THAT BECKY AND JEN DID. WAS GREAT TO SEE EVERYONE. KEEP UP AALL THE HARD WORK!! LOVE AND PRAYERS SUE AND MARK
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