Update 1-17-09

There are so many things to update you all on...I am not sure where to start. We have been doing great the last few weeks.

We had a check up with Carson's pediatrician on January 8, she said, he was looking good and to keep on doing what we are doing!

Carson's nutritionist this week was very surprised...he gained 9 ounces and grew 1 1/4 inches in a week!!! I this explains why he slept until 2:00 pm a few Saturdays ago. This brings Carson to 24 pounds 13 ounces and 32 1/4 inches long! He is our big boy...

We have cancelled his swallow study, as this would have been a waist of time, we know that Carson will not go back to complete oral feeding. Carson still has his NG feeding tube (through the nose). We have a surgery consult on February 3 to begin the process of giving Carson a Mic-key button (through the stomach). We are also going to do a procedure called fundoplasty, this will help Carson's reflux from being aspirated.

We have a nurse come to the house 5 days a week to help take care of Carson, they are here from 8:00-4:00. We have Jen who is our Tues, Wed, Thurs nurse and we have Robin who is our Mon and Fri nurse. They have been a tramendous help! We have also been having volunteers come to the house a few times a week to give Jeff and I time to double team house work or what ever else needs to be done.

Well that is all the updates we have for now...

Don't forget to keep checking for updates on the fundraiser...we are getting very excited to see all of you, and have so much fun at the event! Good luck on winning the raffle...I know we would all like to get out of this cold and go to the beach.