Carson went on a run with me last night, in his Jeep stroller. I put his MP3 player in with him and it seemed that he was singing with it, most of the ride. I also asked him how he was doing and he answered in his own way telling me he was having fun. Who would have imagined that on August 30 at 5:30 in the evening Carson would need long pants, a sweatshirt and a blanket to go on a run. It was such a beautiful evening.
His seizures have been ok. We are still having 20+ a day. He has started this new thing that we are calling episodes right now, we are not sure what they are, if seizure or if he is trying to tell us something. He will go into a whole body extension then holler at us, it is not a cry or scream, just a holler like he really wants us to know something. There is not a jerk or shake that proceeds or follows this, that would be a sure sign to us that he episodes were seizures. Carson's neuro (Dr. Graff) has increased his Clonazepam temporarily to see it it helps his episodes. So far it has not helped.
Carson is sleeping through the night, and likes to sleep in on the weekends. We have been having to wake him up at 8:30am to get his shaker vest and breathing treatment going before the 9:00 bottle.
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