Monday, August 31, 2009

Feed me....

Carson has been telling us to feed him more!!!  OK, so it was actually the pediatrician and nutritionist that said Carson needed more calories.  Carson used to get 25 total ounces all day and now he gets 32 total ounces.  He is taking the change well, he is not having any tummy aches.  He actually seems to be more aware...like the nutritionist said, "calories are energy."  (Carson's updated schedule is on the side of the page.)

Carson went on a run with me last night, in his Jeep stroller.  I put his MP3 player in with him and it seemed that he was singing with it, most of the ride.  I also asked him how he was doing and he answered in his own way telling me he was having fun.  Who would have imagined that on August 30 at 5:30 in the evening Carson would need long pants, a sweatshirt and a blanket to go on a run.  It was such a beautiful evening.

His seizures have been ok.  We are still having 20+ a day.  He has started this new thing that we are calling episodes right now, we are not sure what they are, if seizure or if he is trying to tell us something.  He will go into a whole body extension then holler at us, it is not a cry or scream, just a holler like he really wants us to know something.  There is not a jerk or shake that proceeds or follows this, that would be a sure sign to us that he episodes were seizures.  Carson's neuro (Dr. Graff) has increased his Clonazepam temporarily to see it it helps his episodes.  So far it has not helped.

Carson is sleeping through the night, and likes to sleep in on the weekends.  We have been having to wake him up at 8:30am to get his shaker vest and breathing treatment going before the 9:00 bottle.

Thursday, August 13, 2009

Tuesday, August 11, 2009

Happy Birthday!!!

Carson has been such a blessing in our lives, he is definitely the love of our life!!!  Here are some pictures of the Birthday boy this morning in his pajamas.  Cheers to the first two years and many more to come with our big boy.



We will update you later with pictures of our birthday celebrations!

Sunday, August 2, 2009

Best Video in months!

Its been a very, very long time since we have seen Carson laughing. We were trying to figure out the last time he laughed and were thinking well over 7 months ago!!!

Enjoy the video!

Mom was outa town and came back with a few gifts and Carson loved the dolphin and started smiling. Notice Dad spiked up his hair after his bath.