Saturday, March 29, 2008

Babysitting



This is cousin Julianna updating...


I am babysitting Carson with Aunt Becky! Sarah and Jeff went out on a date tonight, oooooohhhhh! We gave him a bath and played with him a lot. He ate mashed bananas for dinner. Carson was a little fussy but once we gave him a bath he was just fine. He loves when you squirt water all over him and the whole time he giggles and laughs. He is so cute. After bath time we gave him a rub down with lotion. Thank goodness he did not go pee on me, that was my greatest fear. He is now tucked in for the night and I think sound asleep.


Thanks for praying for Carson and keep believing! WE BELIEVE!!!!


Love,

Julianna

Wednesday, March 26, 2008

Bath time

We had a great time today...we got a good work out with our OT, Carson was so zonked after that! He was such a messy boy after eating dinner we had to get in the bath...this is where we had the most fun. Aunt Becky was with us and was able to help me when I flipped him over to have 'tummy time' in the bath! He absolutely loved it...we will definitely have to get a movie of that for all of you. He moves his legs so much, he looks like he is swimming...it is great! He is getting ready for the lake this summer!

Love you all - Thanks for all your thoughts and prayers!

Tuesday, March 25, 2008

Not me....


I didn't do it, the Easter Bunny did.

More Easter

Too many to choose from....








Easter



The pictures say it all. We had a great time in Iowa for Easter! It was

wonderful to see everyone!

Monday, March 24, 2008

Power of Prayer and Strength



I witnessed one of the most powerful and precious moments last night at the Bowman's. As Sarah tucked Carson in for the night, she prayed and blessed Carson in a way that only a mother or father could. I couldn't help but feel so moved by her precious prayers for Carson (it was one of those moments where you truly feel at peace and know your Guardian Angels are all around...especially all the millions of Guardian Angels for Carson). Carson must fall asleep every night with the most wonderful thoughts in his mind...images of him playing, running, talking to girls and playing ball. What peaceful dreams he must have with Mom and Dad cheering him on from the sidelines! Wow! What a Mom and Dad!
A friend of mine asked me this the other day after I had given her the update on Carson, "Did you know that your sister was so strong?" And at first I thought that was a silly question with a simple answer of "Yes, of course she is strong." But after a few minutes of thought, I truly realized she is so much stronger than I ever knew and I admire her to the highest degree. The same goes for Jeff...words can't describe your strength!
Continue to pray for Carson's healing and health...WE BELIEVE!!!
Love,
Aunt Becky

Wednesday, March 19, 2008

Watch me go in my jumper!



This is Carson in the Jumper on Wednesday evening! Doing so great holding his head up and jumping with his legs! He has found a new toy and exercise activity...just wait until his Physical Therapist sees this! He was pretty tired after all that hard work...picture is Carson cuddling with Mom afterwards. Great job Carson!!!! Be sure to read the previous update from Sarah...

DNA and Therapy update

Hello all-

Just wanted to update everyone on what is going on at out house on a weekly basis. Carson has occupational therapy every Wednesday, they come to the house to work with him! This is awesome. We will also have a vision therapist come to the house once a week, that will start soon. Everyone that comes into our house to work with us is great. They all have great ideas for us to help Carson in getting stronger.
We did get a call from the doctors yesterday with the DNA results. He does have a positive Menkes mutation in his genes. However, it is a mutation that they have never seen before. We do not understand all of it yet, we will have a meeting with the doctors in about 4 weeks. We will have much more information and understanding then. The doctors drew my blood today to be able to see if I am a carrier. We will keep you updated on all that is going on.
Carson continues to love his food and we are working our way through the green veggies! I cant wait to start fruits and then meats!

Have a great Easter!

Happy Wednesday!


Aunt Becky here again (don't worry all is well with Sarah and Jeff...I am just helping with some updates so they don't have to worry about it everyday)...

Things are all good at the Bowman's. They are looking forward to spending time with Jeff's family this weekend...I bet all the Bowman's will be so surprised to see how big Carson is getting!

Sarah and Jeff will probably have a meeting next week sometime to talk with the doctors about DNA results...so keep up the prayers...we have already seen the power of prayer at work with Carson!

Hope all is well with everyone! WE BELIEVE!!!

Sunday, March 16, 2008

Celebrating Easter Early








This is Aunt Becky updating...
The family got together today to celebrate Easter early. Carson got some fun new books and cute clothes! The Big 12 Championship game was on and since Iowa State didn't make it, Jeff must have whispered to Carson that it was okay to sleep during the game. Carson definitely took advantage of that and was even snoring away in the middle of the game! The video will be posted soon (I'm having trouble with it...Jeff the tech man will have to do it). It was a nice day spent with family and playing with our little C-man!
WE BELIEVE!

Tuesday, March 11, 2008

nothing new to report

Doctors still havent received the results of the DNA tests. The Neurologist informed us that it should be here in about a week. Not much else going on
We are all getting over some pretty bad sinus infections around here.

Sunday, March 9, 2008

Sunday afternoon







Carson working on strengthening his neck muscles and watching the Cubbies win.

Thursday, March 6, 2008

Monday Doctor visits

Carson has 2 Dr. appointments for Monday the 10th. So we hope to have some good news to post!







Thanks TWN for reminding us of Joanns B-day!

Wednesday, March 5, 2008

Some pics from last weekend






Carson and his buddy John hanging out.

Nice and warm weekend so Carson thought he better try on his jean jacket and new shades.